now, that doesn't seem like much of a feat in itself, however if all the circumstances were taken into account: me half crazy, her accessing the internet on a tablet that has mysterious tendencies, note "tablet" which may or may not be big enough to actually view the font, wifi access that her son set up with a password so complicated a mensa couldn't remember it, and her many distractions of the cabin, the lake, projects and water aerobics, it is truly amazing we were able to connect again.
Aunt Linda was the ray of sunshine we needed to pull it off...
so, Dual award today!
(actually, had to make it a triple award, because you just cant leave out one sister)
now that IS FINISHED, i must give myself an award for persevering through that little exercise of using microsoft paint without a mouse at 1030 at night....its ugly, its looks like a 1 yr drew it...but with some #SunShineyGrit got it done!
on other fronts, i bought a new bike and went for a good little ride today. it was absolutely mayhem learning how to handle a new bike in a mass start, its a wonder i didnt kill anyone, as it took me a few hours to learn to clip in, shift gears, handle the breaks,etc. i really was crash due, but managed to excape without injury. the bike was fab! set out to do a HUGE ride, the Giro Grand Fonda San Diego. course was 105 miles with 10,500 ft of climbing. i made it approx 55 miles, and 5000 ft. it got super hot, i was not up for all that climbing and there are just too many mexican resurants, they were calling my name! phil came to rescue me, it was about an hour drive for him, so i already had a margarita and watched the end of the chargers game (of course we lost) in overtime.
phils status is so-so this weekend. just super fatigued and legs not working.. we say good days and bad leg days, this was a couple of bad ones. he had scheduled basketball practice (wheelchair) and skipped it and napped and rested saturday.
he did do some office work while i was gone today, which included emailing his oncologist, notifying her. so maybe some lab work will follow??
scheduled for PT 3 times a week. which is great, just tons of trunk and strength training, as he is really not able to control his legs and partial trunk right now, but not doing any gait training. so, he signed up for Project Walk again and has his first appointment with them this week. cool thing is that the price went down, previously he paid 200 per session (an hour) and the price is lowered to 100. which is nice, because they do not accept insurance.
additionally, he is still pursuing the spinal cord and injury system of care (which is now a subsystem of the VA) with their own PT, MDs, rehab,etc.
he does have a pending dr ciacci in 2 weeks, with new mri results. guess the spinal cord tumor is growing, which we all sort of knew, so suppose he will shed some light on how much of the trouble walking is the new growth, deconditioning from the last year, or damage from the lower back.
saw gi last week, waiting for a couple of more months for any scanning to see if the tumors in his belly have shrunk.
guess the thing about that, to me, is that the success of this medication lasts 6-12 months. by the time they are able to see if it works, it could already stop working?
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i suppose there is a reason i dont blog as much as i could with updates, and its pretty much because it brings it to the forefront of my (our) thoughts, it either sounds super chipper and its not, or it sounds super depressing and it could not be. just worries everyone to death.
alrighty, make the day sunny and gritty!
#SunShineGrit
What??????? Y'all didn't like the award? It was my olive branch....take hold of that branch!!! My arm's getting tired ����
ReplyDeletePlz know that I love you p